Declan Noone

Declan Noone is the President of the European Haemophilia Consortium (EHC). Declan has extensive experience as a patient advocate at the national, European and international levels. He  currently is the patient representative on the EMA's PRAC committee, and has been involved in over 25 advice procedures as a patient representative with EMA over the last 6 years. He also sits on the Irish national product selection board for the purchase and monitoring of products for the treatment of haemophilia and other related conditions since 2006.   He has worked with agencies such as the UNDP, NICE and ICER US looking at all aspects of drug development from concept to access. Declan Noone is the President of the European Haemophilia Consortium (EHC). Declan has extensive experience as a patient advocate at the national, European and international levels. He  currently is the patient representative on the EMA's PRAC committee, and has been involved in over 25 advice procedures as a patient representative with EMA over the last 6 years. He also sits on the Irish national product selection board for the purchase and monitoring of products for the treatment of haemophilia and other related conditions since 2006.   He has worked with agencies such as the UNDP, NICE and ICER US looking at all aspects of drug development from concept to access.